teddington trust

Staying out of the shade…


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#BearsforRare is a long running charitable campaign launched in spring 2016 by registered charity Teddington Trust. The objectives of this campaign are to provide vital educational resources to patients affected by the ultra-rare condition of xeroderma pigmentosum, while rolling out a national in-school programme, delivering key messages on inclusion and rare disease.

“To bring public attention to the difficulties that those affected by rare disease face when accessing treatment and services, and given their aligned objectives, Teddington Trust were delighted to give their campaign name to SHIRE for this special one off day/campaign to launch their key white paper, bringing the patient voice to the forefront.”
Nicola Miller, Co-Founder Teddington Trust

To support the Teddington Trust #BearsforRare campaign visit

Or #BearsforRarepost a picture of you and your favourite bear on social media with the hashtag #BearsforRare #Bears4Rare – Text Donate – Text BEAR20 £5 to 70070




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