teddington trust

Staying out of the shade…

Meet our new Ambassador and volunteer Patient Services Coordinator (Midlands Region)

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We are pleased to announce the latest volunteer member, Rehana Kauser who joins the Teddington Trust Team, as an official Ambassador and Patient Services Coordinator for the Midlands Area.

Rehana is the mother of 3 beautiful boys and lives in the Midlands area. Her oldest son, now aged 17 was diagnosed with XP aged 8 years old.

rehanaWe have many families located across the Midlands, of all ages and Rehana is excited to join our team to help us coordinate patient services across this region, allowing us to to effectively deliver high quality patient support direct to families.

Rehana will also be helping us bring a range of activities to this region to better connect XP families from within the region with other families across the UK.


Engaging patients and families directly, is a very important aspect of our work and allows us to ensure that our projects meet the needs of all. We are very proud to have an XP child, adult and now a parent represented in our Ambassadors.

We have a wonderful two years ahead with much in the planning and so it is an exciting time to join our volunteer team and have the opportunity to become directly involved.

If you would like to find out how you can be more formally involved in the work of Teddington Trust, drop us an email to discuss. Contact, Nicola on support@teddingtontrust.com 


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