teddington trust

Staying out of the shade…

When Little Ted met Buttony Bear

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Our journeys began like many others do, when something that is completely off your radar touches your life and changes the course of it forever.

We are just four Mums in an army of Mums, Dads, Aunties, Uncles and Grandparents all over the country who are passionate about making ‘rare’ lives better.

Between us we run Teddington Trust and A Bear Named Buttony.

They may be two very different charities supporting very different conditions but we are taking the same approach to educating and protecting children living with complex conditions.

Meet Little Ted and Buttony Bear; these hardworking little bears are passionate about being a good friend to children who are just like them.



Little Ted – Teddington Trust Co-Founder Nicola Miller developed Little Ted and his adventure story books as a reaction to a lack of age appropriate material to help Nicola’s young son learn about his life limiting condition Xeroderma Pigmentosum (XP). Now, an army of UV reactive Little Teds not only travel the world to help young children learn in a positive way how they can live a full life with XP, but also goes to school as part of a primary school education resource; teaching key topics such as diversity, inclusion, rare disease and sun safety for all. Last year this special Ted and his accompanying stories won a prestigious BMA Patient Information Award – Information for Children 2015.

Buttony Bear – Jenny Gow and Lynn Park, with the support of a team of friends decided to do something positive to help children who need to have ostomy surgery. They developed Buttony Bear after a friend gave a bear to a child they knew who had a gastrostomy many years ago. The bear had a button in its abdomen in the same position as the child’s gastrostomy. This simple idea gave her a ‘friend like me’ and is much loved years on from that operation. Buttony Bears now travels the globe having a huge positive effect on the new children they go to live with.

Both charities send out these valuable educational resources to children across the world free of charge offering a valuable friend to both child and parent, and a wonderful way for children to engage with their peers about their condition.

If you would like more information or would like to make a donation to allow us to continue reaching children with our super hero Teds please make contact through the links below.

For Little Ted and the work of Teddington Trust visit: www.teddingtontrust.com/#BearsforRare or our Teddington Trust or Little Ted-XP Facebook and twitter pages.

Email: support@teddingtontrust.com

Donate at: https://campaign.justgiving.com/charity/teddington-trust/bearsforrare


For Buttony Bear visit: A Bear Named Buttony Facebook page.

Email: Jenny at buttony@breakawayfoundation.org.uk

Donate at: http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserPage.action?userUrl=ButtonyBears&faId=598304&isTeam=false

They look forward to hearing from you. x


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