teddington trust

Staying out of the shade…

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Celebrating People – Teddington Trust New Years Honours

As we grow and try and reach more families and achieve our global projects, the support from others is paramount to our success, and so this year our Board of Trustees agreed that in 2016 we would introduce two new Teddington Trust initiatives recognising the importance of people in our work.

The first is acknowledging exceptional people who have really gone the extra mile to help us reach our charitable objectives in the last 12 months which will be done annually in or Honours Role Call.

The second is the very important introduction of the official role of Teddington Trust Ambassadors. These people will be selected by our own Board as individuals who we believe already do, or have the ability to act in a positive way as our official Ambassador, and on this basis our first ever Ambassadors have been selected and approved by our Board of Trustees for 2016, and we are pleased to say all accepted.

So without further ado it is time to introduce the following, starting first with our New Years Honours List:

New Years Honours List 2016

This was a very easy one for us as one name stood out right from the start! This wonderful lady has followed our personal and charity story from the very start and has in some way contributed in every fundraising event or project we have organised since we started in 2012.

We are delighted to name Geraldine Winnett in our first 2016 New Years Honours List.


Geraldine, has sponsored our Starlight Stomps, Cycle and sporting events. She has collected rags for our rag bag scheme, she has donated soft toys for us to raffle and by quite some margin she is our most prolific buyer of our BAKE MAKE DO fundraising book (we are sure she doesn’t have a friend across the land who doesn’t now own a copy!).  Most recently, Geraldine purchased one of our retail Little Ted bears, raising funds through its purchase. But not content with that Geraldine then set up a raffle at her place of work, and thanks to her colleagues at Jacksons Fencing, Ashford, went on to raise a further £180.00 raffling off her bear! 

In addition to her amazing support of our fundraising efforts, Geraldine follows closely our facebook and blog pages, and has offered much appreciated works of support and encouragement just when needed!

So this is our opportunity to say a most sincere thank you to Geraldine for her ever present support. THANK YOU GERALDINE.
And this brings us on to our second and final name for 2016.

Wayne Bishop, has been a consistent friend personally and friend of Teddington from the start. Like Geraldine, Wayne has supported us on many events, taking part in two Starlight Stomps with son Finlay as well as raising money in his place of work, running pediatric first aid courses for parents. Wayne is committed to helping the XP community, and in 2015 took part in Ride London raising funds for the XP Support Group, who run an annual respite camp for patients and families.


Wayne, has also given up his time to contribute to a specialised fitness guide for XP children and young adults which is work in progress as well as devising a personalised exercise plan for Eddison, and worked to secure donated items of fitness equipment for Eddison to support this programme.

So, again, this is our opportunity to say a heartfelt thank you to Wayne Bishop!





Next to our new official Ambassadors…


This year we invited three very important individuals to take on the role of our official Ambassadors and we were thrilled when all three accepted.

Richard Barlow (Ambassador)

Richard is an adult patient with XP, who you may remember supported us last year by being part of our Nightrider 2015 cycle team, who rode the streets of London after dark raising considerable funds for us. Richard was chosen by our Board in recognition of his support of our work and in his ability to provide a much needed positive role model to our younger patients whilst helping raise awareness of the issues of living with XP.

Learn a bit more about Richard:


My name is Richard, 26, I’m a junior doctor and have XP Variant. Teddington have kindly asked me to be one of their Ambassadors. As part of this role I hope to continue the excellent work started by the Trust through helping as many people as possible to understand and conquer the condition. It is also an excellent chance to increase awareness to a wider audience and I will take every opportunity to further this fantastic charity.






Leo Saunders (Ambassador)

Leo is one of our very courageous XP children, aged just 11 years old. Leo received a diagnosis of XP less than two years ago, and has shown huge strength in coping with this. In December last year Leo was awarded a Child of Courage Award by his local community and he continues to raise awareness and highlight the condition of XP through his own facebook site XPosure.

Leo was endorsed by our Board and selected in recognition of the inspirational way in which he has faced the challenges of living with XP, and for the work he does to raise awareness of the condition in such a positive light, and we are very excited about working with Leo on some fun projects to reach the teenage patients globally and to give them a positive voice.

Learn a bit more about Leo:

leo 2

I am hoping to raise awareness and bring about more understanding of this rare condition, to hopefully reduce any stigma or misconceptions socially to the way people with XP have to dress and our lifestyle challenges. I am interested in – motorbikes, bmx, nerf guns, Minecraft, Xbox, along with family movie and Wii nights, nighttime adventures, weird and wonderful facts. 










Jackie Brooker (Ambassador)

Jackie Brooker is the Owner & Managing Director of Dakota Blue Consulting Ltd, an HR consulting practice based in Kent providing HR support to small and medium organisations. Jackie has a degree in Human Psychology, CIPD Diploma and Masters in International Human Resources Management coupled with 20 years of experience working in various HR positions in large global organisations.

Jackie has offered her considerable business expertise and acumen to the Trust on numerous occasions helping us with securing funding, exploring revenue opportunities and in connecting us with her extensive professional network. This invitation to Jackie was made in recognition of her considerable efforts to date in promoting and representing the Trust and our work and in her unwavering commitment in helping us with continued growth of the charity.

Learn a bit more about Jackie:

Brooker_oval picture (2)Dakota_Blue_Logo_Verticalfeel it is a real honour and privilege to be able to represent and promote the Trust and the amazing work that you all do that positively impacts so many people’s lives. I continue to be amazed by what you are able to achieve with such a small, yet dedicated, team.    I look forward to joining you all on the Teddington Trust growth journey and supporting in any way I can.




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Breaking News – Little Ted comes to life

Breaking News from Teddington Trust

As promised we have lots of really exciting things planned for 2016 and here is our next exciting announcement…

We are delighted to be able to announce that thanks to the Golden Jubilee Trust , (a charity founded by The John Lewis Partnership) our brilliant Little Ted Illustrator Michael Howdon will be joining our Teddington Trust team full time for 12 weeks from 1st February.

This fantastic scheme allows John Lewis Partnership employees paid leave of absence to be seconded to a charity of their choice to help with their charitable objectives.

Michael will be working with us to carry out an exciting protect bringing Little Ted to life, helping us create a Little Ted animation explaining living with XP and the science behind it, to young patients and children via our Little Ted Goes to School…programme.

We would like to thank the Golden Jubilee Trust for this amazing opportunity, and we are very excited to get our sleeves rolled up and start work on this project with Michael over the coming weeks!

Watch this space for more on this existing project and sneak previews!

Little Ted Dream TeamLittle Ted Dream Team eager to get to work on our big animation project