Vitamin D is essential for all children and adults for good bone development and long term heath and as we all know the primary source of Vitamin D comes from exposure to the sun. This of course leaves patients with XP depleted of Vitamin D as their bodies are unable to obtain enough naturally due to little or no exposure to the sun.
In order to attain the correct level to maintain good health, a high level daily dosage is required, which can be achieved through a variety of oral supplements.
We are working with Better You with the view to some exciting collaborations later in the year. These guys have a passion to educate the nation on the importance of Vitamin D and are fronting a National Vitamin D Awareness Week in October to raise to the profile of this issue.
You can find a host of informative articles, blogs and information on their website along with a range of supplement products.
Following our dialogue with their team, and ahead of their big awareness campaign the team at Better You have very kindly donated 100 bottles of oral Vitamin D DLUX spray to Teddington Trust for us to distribute to our UK patients. They have provided a mix of 1000 and 3000 IU so we can accommodate both the children and adult patients. Each bottle contains around 3 months intake based on a single spray per day.
We will be in touch with patients (known to us) soon to arrange distribution, or please message us directly to obtain your free bottle.
Its worth noting they also provide a spot-blood testing service, which may be useful for partners, siblings, parents etc of XP patients who may not quality for routine testing but may also be at risk of low levels. As a parent of a 4 year old XP patient, I am going to be taking the test as an indicator, and will let you all know the outcome!
We would like to send our sincere thanks to the team at Better You for their support and we look forward to continuing to work with them in the future!