teddington trust

Staying out of the shade…

Getting Ready for Summer

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It`s been a very busy week this week as Mummy and Daddy start to get me ready for summer!

I was very excited when a big parcel arrived in the post and it was my new UV clothes for the warm weather. Mummy and Daddy found a company in Germany who make UV clothes. These clothes are very special as they are cleverly designed so that they block UV from passing through and so keep my skin underneath safe, and what makes them extra special is that they are very lightweight and breathable. This means that they will help keep me a bit cooler in the warmer weather and allow me to continue to have a little outside time before it gets too hot…and best of all Daddy says they are very snazzy!


Mummy and Daddy tell me how lucky I am as these new clothes are very expensive and I have these thanks to the Teddington Trust and the army of wonderful people who have supported us over the last year.

Another very exciting thing happened this week; I had my first visit from a wonderful new friend Dawn, or as I call her “the lady Dawn”. Dawn is part of our local home Portage Service, who visit children in their homes to give them fun play opportunities. Dawn is going to come and visit me every fortnight and bring me fun new toys to play with together. We will play with large play equipment so that I can experience some big play that I can`t otherwise do easily outside and exciting sensory games. This week we had jungle grass which I just loved having between my toes and I even got to keep some big jungle animals to play with until I see her again. In the future she may bring me things from the beach, woodlands and other fun things.

I have my own nature box at home too, which Mummy and Daddy started when we found out I had XP. When we go on little trips we collect things like shells, twigs, cones, bark and leaves. When I come home and I can take my gloves off this means I can fell all the wonderful textures of nature and smell their smell. I even have an acorn shell thanks to a woodland walk with my Auntie Becky and Auntie Cara, although it was so prickly that I did even feel that one through my gloves!

Mummy is on the countdown to the end of the school term as this is when my weekly activities (which are made safe for me) will end. This means that the places that I can go outside of the home will be very limited, as it will be too hot to play outside by then and the safe indoor activities I go to will be closed for the summer break.

Mummy says that will make our week seem very long….and I think a bit boring. Of course I will have my baby brother to play with, and we will still see Dawn every fortnight, and I will be able to have my friends Finlay and Zahra over to play, which is always fun. But I will miss being able to have my short spells out on my bike or seeing all my friends at my activities.

Once the summer starts, I will start my own new countdown…..I will be counting the days till autumn when the weather cools and I can come back out again, then the clocks go back and best of all I can play after dark, freely without protection, being safe while I run, slide, jump and swing, with lots of energy to burn off after my summer inside.

But for now, we are just hoping that the hot weather stays away as long as possible so I can make the most of my time out of the house and my new UV clothes!

UV Suit

[Note from Mummy and Daddy: They say a BIG thank you to Denise, who fought so hard for my Home Portage visits. x]


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