teddington trust

Staying out of the shade…

Staying out of the shade…

3 Comments

This blog is created to highlight some of the issues faced by Eddison as a very young child with Xeroderma Pigmentosum (XP). We look to share his experiences in the hope of raising awareness of this unique and challenging condition and document his family`s quest to ensure a life filled with fun, adventure and opportunity and not one of shade and limitation.

 We hope you follow us all along this journey and enjoy our posts. x

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3 thoughts on “Staying out of the shade…

  1. Have you went down the slide in your roller skates yet ps. I am in miss gelatie’s class 😏

    • Ahh, no still havent let him roller skate down his slide! Despite what Eddison thinks it really is very “dangerous”. Having lots more adventures though and enjoying all the dark nights for playing in.

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